On a December day in 2001, a mother’s worst nightmare became real.  

Her 12-year-old daughter, Pamela, died suddenly from a hidden, undiagnosed, congenital birth defect. Pamela, once full of energy, full of hope, full of joy, full of promise, was a memory.  In the blink of an eye, life unexpectedly ceased forever. For 12 years, her defect lay undetected and undiscovered, but in an unsuspecting second, it became unleashed to reveal its ugly head. Early detection could have prevented it. Simple testing could have avoided it. Sadly, no one really suspected it.


Pamela’s mother refused to let Pamela’s memory lay dormant like the defect that took her life. Instead, her agony turned to action. Her pain turned to purpose.

And so, the Pamela Project was born.